He was in 5th grade and wanted the Lego set for The Nightmare Shark Ship (and a Nerf gun).
He’d been on a pirate ship, so he knew what he was getting into.
This past year, he was a right defensive tackle on his school football team, but for the past two and a half years, he’d been caring for his dad, who had cancer.
He had been a primary caregiver for his father, doing all the hard tasks, from giving medicine to getting him in his wheelchair or on the toilet.
His dad died on October 22nd of this year. So, for 2024, he hopes to go with the flow and play with his friends.
Listener Poet Elizabeth Pringle
Inova Schar Cancer Institute
December 2023
Captain of My Ship
With The Nightmare Shark ship
I will cut through the waters
Sails full, only horizon ahead!
I am the captain and creator!
Brave enough to face
Unknown dangers
And strong enough to care
For my father.
I am ready to command
The waves and the winds
The sudden storms
My harbor is kindness
My pirate’s gold – compass
“I always believe, no matter what the doctor says, that I will be cured,” she says as her sister sits next to her.
“I wonder if these medical professionals, in caring for people who face such insurmountable odds, walk around all the time carrying this weight I’m hauling now.”
He had been trying to cope with the grief ever since and was on a quest for soul-searching and meaning-making.
She spoke about the ways this traumatic event shaped who she is today: a person with an “unshakeable peace” born of deep faith,
She wanted to help people feel comfortable and transform the shame around colon issues. "I want to talk about things that matter, the things people don't want to discuss.
When we met, she was coming off a stretch of nine 14-hour shifts. She was tired but in good spirits.
She reflected on how her resilience was born from moments of shared mirth amid life's trying chapters.
“Life is complex and dirty, but digging in is important to me,” she said. “Maybe if more of us understood history, we could understand each other better.”
We are expected to research, contribute to scholarship, earn grants – all on our own time.
We are expected to research, contribute to scholarship, earn grants – all on our own time.
Every day, I try to see through the patient lens, and I ask: what can we do to change this broken system?
She was very proud of her daughter and has hopes for “a bright future that’s as pain free as possible”
“I’m trying to focus on doing little things to make people feel better during everything that’s going on in the world,” she told me.
“It’s hard to see others struggle,” she said. “How can I help with their struggle without struggling myself?”
"I'd tell her it's OK to be loud...it's OK to challenge and to bring all of you into these spaces where no one looks like you..."
“I'm continuously questioning: did I do it right?" she said. "I’ve always done a good amount of second-guessing, but I’m re-learning how to show up differently.”
“It’s weird,” she said. “This is one of the biggest accomplishments of my life, but it doesn’t feel like it.”
"It changed me; It changed the way I look at life," said this woman about her profound experience during her pregnancy.
“It’s been more challenging than normal lately,” she said. “I’m only one person. It's a struggle for me to say no, but I can’t do everything that’s being asked of me right now.”
"I've been processing how to make the most of the small amount of life we have to live," said this physician.